Benedict Lamb’s search for a life-saving treatment for his son, Zak, began when doctors said there was nothing more they could do.

 

At 15, Zak’s worsening seizures gave him just months to live. Determined to find an alternative, Benedict discovered CBD and Epidiolex, a cannabis-derived medication. Though not widely available, his persistence led him to Justin Gover, CEO of GW Pharmaceuticals, who granted Zak a rare special license—under the condition of a one-year NDA.The impact was life-changing. 

 

Within a week, Zak’s nightly seizures dropped from 12-16 to just one or two every few days. His awareness, vocabulary, and social engagement improved, giving him a better quality of life. Now that Zak is an adult, he still faces challenges but has opportunities he wouldn’t have had otherwise, including attending St Piers College.Inspired by this journey, 

 

Benedict founded Patient Z to support families facing severe epilepsy and push for NHS access to medical cannabis. As Zak prepares to try a new THC-based treatment, financial uncertainty remains, fueling Benedict’s fight for policy change so no parent has to choose between their child’s health and financial stability.